Look before you leap; the politics of Special Education

For some time now (most aggressively this last school year), there has occurred some major shake ups with respect to special education here in this county.  In theory, it's supposed to equate to nearly a complete overhaul of the system.  As with any issue where tax payer dollars are involved, there will certainly be political agendas behind it.  While change is often for the greater good, the message conveyed behind why the change is necessary, often gets lost, muddied, or was simply an "excuse" to satisfy the people, and hide the real intention behind it.

Based on a report of analysis of the current educational model here, many suggestions were made, that are in fact very legitimate, and in desperate need of change.  They highlighted the disproportionate amount of special ed. students being segregated to special day classes, separate sites, etc., as well as some huge inaccuracies in particular ethnic groups being labeled as disabled, when in fact those issues stem from social maladjustment. 

These are important key points to look at.  Students need opportunity to be placed in the least restrictive environment and to be educated with their non disabled peers to the maximum extent appropriate.  The other students have the right to be educated with their non disabled peers, and not be subjected to profiling based on their color, where they end up inappropriately labeled as something they are not.

It all sounds fantastic and beneficial in theory.  It's as if someone waved a magic wand, and suddenly the district woke up.  Were it not to coincide with a massive budget gap, and a failing economy, it would seem pure in intention.  Some may say that's just killing two birds with one stone, and you're being to cynical to see the forest through the trees.

Let's examine some of the underlying issues that are prevalent already with the old model, and how they will one, continue to affect the new model, and two, due to the budget, create a massive failure of the new model.

Adequate training.  This is a huge issue in general.  Those classified as special education staff, often lack even rudimentary knowledge in behavioral theory.  They may be sent to a workshop on a particular topic sporadically, but it's often a band-aid at best.  They are not given the opportunity to thoroughly learn the nuances of behavioral theory, and put them into practice.  This isn't just at the parapro level, this is true of the teachers as well.  So, there is a behavior department, which is much more thoroughly trained, has access to creating visuals, and comes out as support to these individuals, to teach them what they weren't given the opportunity to learn.  Once again, sounds great.  Except that within this district there is a growing sense of disdain towards the special ed. population, and the current crop of staff that believe that these students don't have the right to have behavior, or that they as staff, shouldn't have to put up with the level of intensity that some children display.  So the behavior department tries their best to train them, and show them the error of their ways, and give them the tools that will make these students successful, though they are often met with hostility, and refusal by the part of the staff.  They refuse to implement these tools, and ultimately the students suffer.

These are people who are supposed to be best suited to work with the special ed. population, who actively made the choice to work with these students.  They lack the necessary skills, and desire to learn how to help these children.

Now, those issues go mostly unchecked.  The district decides it's going to adopt a new model, and begin mass integrating most of these students back into regular education.  To exposing them to staff that have zero experience or training with this population.  The simplest answer would be to begin training the regular ed. staff prior to the shift, so that these students don't fall by the wayside (or even training them at all).  This is all set up under the guise of providing these students with the least restrictive environment, and trying to be in line with what federal regulations mandate.

But, no such training is taking place.  Add to that, once some students are placed, the request for support can take several months to arrive, meanwhile, once again, the student suffers.  This does not smell of genuine concern to mainstream a child, but rather a means to an end to ease budget woes.  Educating students in special day class, separate facility or even non public settings is extremely costly.  Some non public settings can range between $166 to $235 dollars a day.

Were the district to be actively training and transition planning for this influx of students, this cause would seem genuine.  I find it hard to swallow that this is their actual intention; to provide for the greater good of these students, and not to simply save money.

Even more interesting is that these decisions for this new model come at a time when there is no superintendent, and a blood bath taking place amongst the school board.  Budget cuts,  poor economy, no actual leader, political infighting; very interesting timing indeed.  Change is vital to progress, when the intention is genuinely designed to affect the greater good; not place further constraints on an already broken system.

Maybe I just have a biased opinion from personal experience working in conjunction with this district, and having a child not being served by it adequately.  Maybe I have a skewed view because I have the luxury of intensive training, and staff who genuinely believe in what they do, and are always willing to learn new things. Or maybe, it's just the skeptic in me, that screams this is not what it seems, don't let them pull the wool over your eyes on this issue, while these students get lost in the maze, and will only further regress.

They say patience is a virtue, though I hold little faith that patience will show with time that this move will work out for all, and is a heartfelt sentiment on behalf of the district that is just simply experiencing some growing pains.

My two cents on the subject.

When those in charge of compliance, are ironically out of compliance

The special education system is often like a labyrinth at times, and can create enough frustration, that you almost give up on the whole process.  Opinion and interpretation are at times, not relevant to the regulations or law, which is just one trapping of the system.  I'm okay with that though; it's true of all life situations.  Where the law is clear cut though, is a whole other matter.  There's a system of safeguards in place that are carefully laid out, and the what, why and where of receiving help. 

Cool beans, right?  Well, that is if the people in charge of those safeguards actually adhere to them, or aren't guilty of misconduct themselves.  There's a chain of command for such situations, because unfortunately people fail in their duties at times, and occasionally you have to seek help from someone above them.  But what happens when EVERYBODY in the chain is out of compliance? I mean that is aside from you developing a permanent eye twitch, and wanting to pull your hair out on a regular basis.

My very unfortunate personal example:  First, you discover there are compliance issues with your child's IEP, and you then address that to the principal (check).  Principal admits "Oops" (though it's their oversight to ensure such issues don't occur), but does nothing to correct it.  Next step, you discuss this with your ombudsperson, and file a district level compliance complaint (check).  Meanwhile, about fifteen other compliance issues emerge, so you again, attempt to contact your ombudsperson, to begin the process of filing more compliance complaints (check).  You diligently await your first compliance complaint investigation to be completed, and the resulting investigate report that will contain the corrective action (check).  But you still haven't been able to amend the other fifteen issues that have occurred, because said person never bothers to get back to you, or give you access to the paperwork to file to correct it all.  After a certain period of time, this person is now out of compliance for not getting you either the compliance paperwork, or concluding the compliance investigation, and informing you of the result (check).

Is that ironic?  The person in charge of compliance, can't manage to be in compliance themselves.  What's even more ironic, is that you can't get a hold of the person to determine who you report them to for their failure, because they are the omnipotent power in charge of all issues within the district. 

Meanwhile, your child suffers in this broken system.  And because you do things such as file complaints over legal issues (not your typical "I'm an overprotective parent that can't be satisfied because you didn't wipe his nose 25 times today"), staff begin to view your child unfavorably, and will even go so far as to create behaviors.  They even accidentally send you an email discussing how they are going to willfully be non compliant of the law, because they don't care for your previous actions with regard to filing compliance complaints (and well, if you can't get a hold of the person in charge of these issues, your left talking to thin air).

It's a sad state of affairs.  Like these children don't have enough to face everyday.

It situations like these that makes us such a litigious society.  It's one thing when it's only one link in the chain that is weak; it's another thing when it's the whole entire chain.

Judge not lest ye be judged yourself

Religion aside, it's a simple mantra to live by.  A general "moral" rule of thumb.  Yet, there will always continue to be those people out there who will do exactly that, though fail to see their wrongdoing in the situation.

My unfortunate example of this for the day: Another blogger parent out there with more on his plate than he and his wife deserve, but doing the very best they can.

He is very open and honest about the journey they're on, and how difficult the road can be on even an hourly basis.  He shares the story that far too many of us are familiar with in the struggle to raise special needs children.  For many of us (and I know speaking for myself personally), it's a great inspiration as well as comforting to know that we are not alone in this.

Parenting, is always a hotbed of debate.  Since none of us were issued an instruction manual upon birth, we all have differing views on the specifics of raising a child.  Add to that a special needs child (or in some peoples case, multiple special needs children), and surely, the shit is going to hit the fan at some point.  War's alone could rage over parenting till the end of time.

So recently it seems, some people have chosen to accost him, over the methodology, and just in general, about the way he is fathering his children.  Going as far as to make threats that he is abusive, and the age ol' threat of involving authorities in the matter.


First and foremost, any parent who takes the time to create a blog in reference to their children in attempt to connect with other parents in a similar situation, certainly is well invested in meeting that child's needs.  One does not seek advice, were they to be neglectful, or unconcerned about their children.  This should come as basic common sense although often, common sense is non existent in the general population.  


Secondly, people are allowed to have feelings, and frustrations.  You do not need to agree with them, or approve.  We're human, and it happens to all of us.  No parent has always been a hundred percent chipper all the time.  With that being said, that does not suggest that an individual is abusive, or does not care for their child or children.  We all fall down.


And last but not least, until you've been in this situation yourself, you have no basis to opine, let alone make accusations.  This is where passing judgment eventually is going to come back and bite you in the ass!  You may read the blog and surmise your take on what life is like with special needs children, though that in no way makes you an expert, or gives you the right to suggest abuse.  If there were posts that suggested neglect, abuse, or anything other than genuine concern for the children, then I certainly missed them, and whole slew of other readers.  


I could expound for years on this topic, as I've had the displeasure of being in this situation myself.  Special needs is exactly that, a child who requires things to be done differently.  There is a myriad of modalities from proactive to reactive and everything in between.  Unless you either have a child like this, or your educated to work with the population, you haven't the faintest idea what is right, wrong, or what it takes to raise children like this.  Behavioral theory is a vital component for ALL children to be successful.


And sadly, the end result of people who interfere and make threats is that they diminish the child himself as well as the parents.  You are not seeing the who and what that makes him up and instead passing judgment on what is a legitimate disability, and the caregivers so desperately trying to provide the best care for him.  These are people facing unreasonable odds, and still take the time to try and help others out there faced with the same situation.  How is that abusive?  It's commendable, and you be ashamed for being such a vacuous waste of space in our society.  What good are you providing in general, let alone for these people?

There is a reason one should not judge unless your willing to stand up to scrutiny yourself and prove you are infallible.  Until such time as you can do that, your should just keep your comments to yourself, and let others live their lives with out being exposed to your ignorance.

Do "live" people even exist anymore?

Technology is great, but it seems to come at the expense of not dealing with live people anymore, or any assurance that something you say, actually makes it's way to a real person, with real concern.  As I lamented that I was probably in haste to complain about MTS still not contacting me (though a week doesn't seem all that impatient to me, given what transpired), I just now received my response from them:

"Thank you for taking the time to submit your comments to us. 

It is important for MTS to hear from customers regarding their 

experiences on public transit. 

Please, be assured that the appropriate action will be taken 

concerning the incident you have reported. 

Feel free to contact us in the future regarding your transportation 

needs.
 
 
MTS Customer Relations Department"

If that isn't a standard automated response, then clearly, the extent of 

my complaint fell on deaf ears.

Guess maybe, I set my expectations to high with regard to discrimination 

and prejudice.

Can't wait to run out and purchase that pass for my son to line their pockets!

*End Rant* 

Wishing I could label this "MTS, part deux"...........

But that of course, is not the case.  I should aptly name it "Discrimination ignored as usual" or "Ignorance gets a free pass".  I don't know exactly why Im shocked that my email has been ignored over their ridiculous behavior; or maybe rather it's just akin to rubbing salt in the wound.

Im sure when I email them again about last weeks little excursion, they will no doubt tell me they're overwhelmed with volume, it got lost in the shuffle, blah, blah, and super blah.  Im aware these things happen from time to time, but unless this behavior has become prevalent (and has yet to be exposed), I find it hard to believe that my email didn't stand out against the garden variety other complaints. 

Maybe Im just bitching in haste, and that response will magically appear in my inbox within the next few hours. 

This kind of situation, is just one of the many daily instances that make being a parent of an Autistic child so laborious.  So much of our time is consumed having to advocate, defend, and try to amend others wrong doings.  It really shouldn't have to be this difficult, but I suppose many another disability faced such obstacles in it's infancy before awareness and acceptance were truly is widespread. 

It's exhausting.  It takes away from what we really need to focus on; our children and helping them to navigate this often unkind world.

No matter how you slice it, Vaccine debate is always a war zone.

Now days, everyone has heard of the vaccine debate.  It's more front and center, then many other factors of Autism Awareness unfortunately.  Beliefs divide friends and family, and often garner enemies in the blog-o-sphere.  For many, it's an emotional battlefield, where no one is a clear winner.

My view lands on the pro-vaccine side.  I could give countless examples of why I feel that way, but that really wasn't the intention or point of this particular post.

I was recently pseudo-lambasted on another blog over such a debate.  This particular post was in reference to a very difficult decision a family with a history of Autism and vaccine reaction, and where to proceed to next.  There was reference that bends the direction of being pro-vaccine, and some coverage on how the whole debate should be scientifically dead.

Let me preface by saying that I'm an avid reader of the anti-vax nonsense.  On a daily basis, I subject myself to their twisted logic, endless rants, and fervor for their belief that I can only compare to that of common zealotry.  It pains me to no end (and often leaves me wanting to jab a sharp implement into my temple to simply stop the headache I have received from reading their tireless tirades).  I, unfortunately, have a lot of experience with their views on the subject of vaccines, but more so, their view on Autism.

Fast forward (or rewind back to the blog posting I was reading).  The blog author of this particular post, was asking the question as to why it is this debate is even still alive.  Well, don't ya know, I inputted my two cents with the experience (emphasis on my experience, not to be confused with their belief system).  I commented that in my experience, anti-vaxxers need something or someone to blame, and are often "mad" that they didn't get the child they wanted.  Mind you, this is their opinion, and if you read many of their blogs, you will find much in the way of evidence to support my assertion.  Hence why I made the "mad" statement.  This is their interpretation and view, not mine.

Autism in general comes emotionally loaded for those of us either involved with, or affected by it.  There are far too many factors to list why this occurs.  Jumping the gun isn't fairly uncommon when people read posts related to the topic, and glean simply one or two action words that send them into hostility or offense.

The first commenter to take my post out of context, relayed that in her personal experience she had never come across a single parent that was mad their child had Autism.  While she is obviously fortunate, I cannot say the same for myself.  I have had the displeasure personally, and as I stated before, such beliefs are alive and well in the anti-vax forums.

Second commenter, reiterated them same sentiment.  Blog author then had to feel as though he may have offended some people by saying previously that he understood the view I had mentioned on certain parents out there feeling anger for their children being Autistic.  She then responded by saying that she understood that was not his view, but that the statement had come from a comment made by someone else (that someone else of course being myself).

Here, is where emotion enters the picture, as often happens with this particular debate.  Evidently, my statement that there are other parents out there who are "mad" that their children are Autistic, and not that this is my particular view on the subject gets muddied.  I at no time asserted that was my sentiment, feeling, or opinion on the topic.  Often times emotion leads to cherry picking of a particular statement or two, or confusion of the context.

As I have mentioned, spend some time on the more popular anti-vax website, blogs, boards, and forums.  You will find statements such as "Autism stole my child's soul", "Autism kidnapped my child", and "Autism stole my child's future".  These are their statements, not mine.  Such statements are indicative of anger and hostility about the condition.  They are not child centered; they are complaints of loss on the parents part.

I need not clarify my view on my son's Autism, but since we're here, and people want to misinterpret what I say, might as well make a go of it!  Am I sad that my child has a disability, of course.  Am I sad that he will not be afforded as many options, opportunities, and experiences as a "typical" child will be; absolutely.  I am however, in no way angry about it.  I get angry at the ignorance, and prejudice he often encounters.  In retrospect, his disability is almost a blessing in disguise.  I have a "neurotypical" teenager, who in less than two months will graduate from high school.  Who has been afforded every opportunity to succeed, and have a plentiful life.  Said child, lacks such motivation or concern for her impending future.  In many ways, the issues we as parents encounter with "typical" children are far more difficult than that of a disabled child.  My son will not encounter the typical trials and tribulations of being a teenager, and for that, in many ways I am thankful.

So in the future, I suppose I will have to be more careful how I paraphrase others opinions, so as to avoid having them confused with my own.  It's rather unfortunate, when it seems so clear, but often this is the case when it comes to human interaction; it can result in war, rather than peace.

Public transit individuals not qualified to make a diagnosis

I am still so extremely angry and bothered by yesterday's experience with trying to get my son his disabled transit ID.  The sheer ignorance, audacity, and flat out rudeness of the lady I dealt with yesterday is still reeling in my mind.  Over the years we definitely have had some situations that irritate you, but this one was by far the worst situation I've had to experience.

We had to travel all the way downtown to The Transit Store, which in itself is always a nightmare.  Traffic is horrible, parking will cost you ten dollars an hour (and you still have to hike four blocks or more to get to your desired location), and it's a sensory disaster waiting to happen for someone who is Autistic.  We avoid downtown like the plague (America's finest city, really?).  Never mind that this also entails both of us having to be present to hopefully prevent any meltdowns, and the cost involved with the subsequent loss of work to perform this task.


My students all have transit ID's, and I've been through this process before; it's typically a piece of cake.  Filled out application form, student ID, and an IEP listing federal handicapping code.  Pay fee, take picture, out the door you go.  Yesterday, was by no stretch of the imagination, easy.


We hand all necessary items to clerk/attendant/rude, unqualified, and incapable of reading a simple date transit worker.  First, she argues that there is no date on the IEP.  Really, the date of the annual, the date of the last triennial, or the date of entrance to special ed?  There's many to choose from, and make it quite clear that said disability is evidently not "temporary" (entrance date of 2001 should make that pretty abundantly clear, but maybe Im just being snarky).

Next, she apparently decides (after we point out the dates to her), that she want's to question his disability.  She asks another (much older I might add) transit worker to come over, look at the IEP (because evidently their experience must be limited), and then has the gall to point my son out.  My blood began to boil.  Who the hell are you to point out my child, and look him up and down trying to decide for yourself if you think he is Autistic or not!  Who are you to publicly embarrass him in front of about 20 other people, and pass judgment on his disability and it's validity in your eyes.  What gives you the qualifications to make such an assumption?

Clerk/attendant/rude, unqualified, and incapable of reading a simple date transit worker came back to the window after consulting with said older other transit worker (who looked clearly embarrassed herself for her co-workers behavior), and very curtly said "Go to the next window for your photo", and stomped off.

This whole little display had angered us, and my son even says "Why is everyone staring at me" and "how come she can't read an IEP?" and the kicker was when he said "Im sorry Im causing so many problems".  Granted my son is very high functioning, but appearance alone is not a determination of who is, or isn't Autistic.

We get in line,  take his photo, and wait to get his new ID.  It's spring break, and it's time to begin mobility training; the earlier we start the better odds that he'll be independent in the future.

We thought the whole skirmish was over, and that we'd be on our way in no time at all (ha).  We receive his ID, and in beautiful bold red lettering does it state "temporary ID".  What, and wtf?  Im not new to this.  Disabled ID's for transit are good for five years (temporary ID's are issued for well, temporary disabilities).  When did Autism become temporary?  She couldn't help herself obviously, and in her spite marked our application temporary (according to her ability to "see" my son's disability) .  Was there a supervisor in site to help us with this situation, of course not.

If the ID's were only to be issued yearly, I would suck it up and deal with it; policy is policy.  I of course know this isn't the case, and am pissed as hell that this little trollop had the nerve to be so petty, and unprofessional by just adding insult to injury after her little public display of knowledge.

My only recourse was to email the transit authority, and make it very clear that this issue needs to be resolved accordingly, and that failure to do so will result in a subsequent filing of an OCR action.

Such instances are a travesty to our children, and anyone who has a disability.  I find it repulsive that people can be so ignorant.  I find it even more disturbing that had I not the knowledge of their policies, I would have been unaware of what they had just done to my son.

April is Autism Awareness month, and clearly, we haven't got the message out to enough people yet.